When Harvey was born in March 2020, just days before the first COVID-19 shutdown, he appeared to be a healthy baby boy. Within months, his parents began noticing developmental delays. He struggled with head control, avoided using one arm, and wasn’t meeting milestones like crawling. By eight months, his parents, Adam and Jackie, knew something
Read MoreRare Diseases
A Families Journey with Sturge-Weber Syndrome
Twelve-year-old Mason Marlow was born with a reddish-purple discoloration on the face, known as a port-wine stain birthmark, which is a hallmark of Sturge-Weber syndrome, a rare vascular disorder that can cause progressive brain injury, epilepsy, paralysis and glaucoma. At five months old, Mason started having seizures. His parents, David and Desirae, were referred to
Read MoreKilometers 4 Carter
Kilometers 4 Carter is a cause close to our hearts at Child Neurology Consultants of Austin. The inspiration for the cause is Carter Halliburton, a young patient of pediatric neurologist, Dr. Karen Keough, who suffers from a rare, debilitating neurological condition known as SynGAP1. This weekend on June 13, Carter’s father Peter Halliburton will be
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