Tuberous Sclerosis Center

Learning that your child has tuberous sclerosis (TSC) can be overwhelming. We’re here to help.

The Comprehensive TSC Center is a partnered program between Child Neurology Consultants of Austin and Dell Children’s Comprehensive Care Clinic (CCC). It became a designated site in 2012 by the Tuberous Sclerosis Alliance, the leading medical organization overseeing best practices and research.

The TSC Center offers a diverse team of specialists to support patients and families in all the various complexities of the disease. Dr. Karen Keough, child neurologist at Child Neurology Consultants of Austin, and Dr. Deborah Briggs, adult neurologist at Seton Brain & Spine Institute serve as co-directors of the program, partnering with Children’s Comprehensive Care clinic Medical Director, Dr. Rahel Berhane.

Comprehensive Care for Children with TSC

Children with TSC may come to the TSC Center for their overall screening, or to get coordinated care. The CCC ensures children get referrals to the appropriate specialists to monitor and treat TSC. You can choose to transfer your child’s primary care to the CCC or work in collaboration with their primary care provider.

A multidisciplinary group of pediatric subspecialists were recruited to best serve patients and maintain the highest level of care associated with the Gold Standard requirements of the Tuberous Sclerosis Alliance. These subspecialists participate in training and case review several times a year to maintain their knowledge. 

Subspecialists include:

  • Cardiology
  • Endocrinology
  • Genetics
  • Nephrology
  • Neurology
  • Neuro-oncology
  • Neuropsychology
  • Neurosurgery
  • Ophthalmology
  • Pediatrician
  • Radiology
  • Urology

Community Involvement

The TSC Center offers fun and educational activities for patient families such as the Annual TSC Patient & Family Picnic held every spring.

How to Enroll

If your child is under 18 years of age and you are interested in enrolling them into the TSC Center, contact the Children’s Comprehensive Care Clinic’s enrollment coordinator at (512) 628-1833 for more information.